Some terms you may come across

Collaborative or collaboration

Is about a number of people or groups (at least 2!) working together to achieve common goals as a team. This is an aim of co-production. This can also be called a partnership. This can offer new ideas and insights as two heads are better than one and can bring in more diverse perspectives!!

Co-production (e.g. in a YPAG or with another group in the community)

Refers to a way of working where researchers and young people work together to reach a collective outcome. Researchers listen to YP views and opinions and YP express their ideas to reach an overall outcome. We follow these core principles in working together: treating each other equally and sharing decision making, being open and transparent, welcoming different skills and knowledge, listening and respecting different perspectives, and building and keeping good relationships.

Confidentiality

Refers to the treatment of information that people disclosed to each other in a relationship of trust. There is an agreement that it will not be revealed to others unless permission is given by the other person or participant. YPAG is a confidential environment and everyone’s views are kept within the group.

Commitment

Is about holding true to the amount of time, resource, and energy you’re going to give to yourself or another person. In the YPAG you have to be committed to the team and the meetings you have to ensure the work you have said you will do is completed.

Ethics

Research ethics provides guidelines for the responsible conduct of research. In addition, it educates and monitors scientists who conduct research to ensure they have the best interests of anyone involved or affected by the research, and that it is unlikely to cause harm. It aims to protect individuals and groups and ensure full dignity, respect, and privacy.

Evidence-base

A collection of knowledge and research in a particular subject area.

Evidence-based practice

Locating, evaluating, and using up-to-date and valid research findings, to inform decision making at work (or at home).
Involvement (e.g. in a YPAG) – you work alongside researchers to help develop the research study, you may be the interviewer, you help analyse the data and understand what it means

Participation in a study

You are involved as a research ‘subject’. You may be interviewed, do a survey, use an app… Your data is used and analysed. You should be given information about the study and complete a consent form to say you are happy to be involved in the research activities and for your data to be used.

Research

The step-by-step investigation of information material or ‘data’ sources in order to establish facts and reach new conclusions. In YPAG you will be heavily involved in research and may analyse research, develop conclusions and give opinions.

Researcher

A person who carries out academic or scientific research. They may carry out studies and use your data and ask for your opinion and ideas on their studies. They may discuss the research process with you and what the findings are from their studies.

YPAG

Young People’s Advisory Group

YP/Young person

The definition of ‘young person’ is up for debate. However, it is usually under the age of 18, or under 25 for young people with more complex needs or additional challenges